💙 New to Blau? Start Here.
We know how overwhelming it can be to face a rare disease diagnosis like Blau Syndrome. You are not alone — and we’re here to help guide you, connect you with resources, and empower you to take the next steps with confidence.
Here are a few ways to get “on-boarded” into the Blau community:
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Watch: Expert Webinar
Start with our introductory webinar featuring leading Blau researchers and clinicians. Learn how Blau Syndrome presents, progresses, and what current treatment and research options look like.
▶️ Blau Syndrome: A Monogenetic Granulomatous Disease
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Explore Our Website
Take your time browsing through our site to learn about:
· What Blau Syndrome is
· Patient and family stories
· Research news and opportunities
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Join the International Patient Registry
Help drive progress in research by enrolling in the Blau Syndrome International Patient Registry.
Your experience matters — and contributing your data can help shape the future of care.
👉 Learn more and register here
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Follow Us on Social Media
Stay connected and informed by following us on social media. We share updates, stories, events, and resources just for the Blau community.
🔗 Instagram | Facebook | TikTok
